Healthy baby and more DS understanding

Edry had his follow-up check with our paediatrician (PD) this morning, and he passed with flying colours! The doc noted that his jaundice is looking better, which means that Edry’s liver functions are getting better (yay!). His lungs, heart and everything else checks OK too. I only need to put some lotion on him since his skin is a little dry. Dang that phototherapy lights! He also reconfirmed with me that Edry doesn’t have any congenital issues (health problems present at birth). I asked him about the possibility of Edry getting atrioventricular canal defect (AVCD), a common problem among Down syndrome children, and he said if it’s not congenitally detected, then he won’t have it even when he grows up. What a relief! PD mentions that I only need to be on the lookout for ear infection due to his low muscle tone.

The doc and I went on to talk about other things, specifically the early intervention programs (EIPs). He handed me a leaflet of Seri Mengasih Centre, so I thought I’d share it here.

Early Intervention Program

For babies, toddlers and young children from 0-12 years old with:

  • Cerebral Palsy
  • Intellectual Disability
  • Motor Coordination and Sensory Impairments

Day: Every Wednesday
Time: 2:30pm for assessment, 3:30pm for playgroup

Program follows a multi-disciplinary approach involving:

  • Physiotherapy
  • Occupational Therapy
  • Sensory Integration
  • Counseling / Assessment

Conducted by:

  • May Vivien Lim, Physiotherapist, B.Sc. (Physiotherapy), Australia
  • Jasminah Ali Umer Kutty, B.Sc. (Physiotherapy), Australia
  • Florence Lajangang, Occupational Therapist, B.Sc. (Occupational Therapy), United Kingdom

Fee structure:

  • Annual membership fee payable to Seri Mengasih Centre (including free access to the Resource Library): RM50
  • Payable to the therapists:-
  • Preliminary Assessment (45 mins, one-off): RM50
  • 3-sessions per month (1 session is 45 mins with all therapists): RM75
  • Extra one-to-one therapist session: RM50

This is a really good start for me. I got tons of information and more understanding of the types of services and therapy I can get from non-profit organisations as well as government centres. I think I’ll just do a different post for that later. For now, I’m taking a little time to be grateful to the Lord concerning Edry’s health check.

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